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Cystic fibrosis: Mum fears her baby will die after drugs are axed

A mum has said she will be forced to watch her baby daughter die if certain cystic fibrosis medicines are axed.

The National Institute for Health and Care Excellence (NICE) withdrew its recommendation for a number cystic fibrosis (CF) medicines over cost.

Charlotte Perkins, 38, whose 17-month-old daughter Delilah has had CF since birth, said she was "devastated".

NICE said it is evaluating the "cost effectiveness" of the medicines so that "taxpayers continue to get value".

10 November 2023

Cystic fibrosis

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