Finlay Thornell wants to raise money for charity and spread awareness for the condition.

Creon, a pancreatic enzyme replacement therapy, helps digestion but stocks are desperately low.

Allison Angell was the first person in Britain to have four of their major organs replaced.

Sophie Pierce is determined to make the most of her life - however long she may have.

Anthony O'Toole, known as "Mr Christmas", says he is now too old to climb ladders to put the lights up.

Cahir O'Hagan was 25 when he died from cystic fibrosis while waiting for a lung transplant.

A man whose brother died waiting on a double lung transplant says more work is needed to make Cystic Fibrosis drugs available.

People who rely on Creon to digest food say supply issues are making them scared for the future.