Zolgensma: Dad hopes 'game changer' drug could save baby

Zolgensma is the world's most expensive medicine, its list price coming in at almost £1.8m.

The drug can be used to treat spinal muscular atrophy, a genetic illness which causes progressive muscle weakness. Without treatment, those affected rarely live beyond the age of two.

The NHS has negotiated a confidential discount which will enable dozens of affected infants to be treated each year. Five-month-old Arthur is one of the first to benefit, and his dad says the treatment will allow Arthur to have the "best possible" life.

31 May 2021