Suffolk teen with mitochondrial disease celebrates 18th birthday

A "cheeky" teenager who was told as a girl she might not see her seventh birthday due to a rare genetic disease is celebrating reaching adulthood.

Tegan Harvey, 18, from Walsham-le-Willows, Suffolk, has mitochondrial disease, which causes seizures and affects her brain and muscles.

Her mother Nicki Eley said her "fighter" was "the joy of our lives".

She said reaching the milestone was testament to her "fantastic team of doctors" and her own determination.

"We knew there were problems with Tegan not long after she was born, but it was at the age of six she was diagnosed with mitochondrial disease," said Ms Eley.

"The neurologist said he didn't think she would see her seventh birthday. The fact that we are looking at her 18th birthday is astounding.

"She is incredibly resilient, she is a real fighter and an incredibly cheeky person."

Ms Eley said suffering from seizures had always been her daughter's "biggest problem", which left her unresponsive.

However, she was prescribed new medication in the summer and it had a "miraculous effect", allowing her to "blossom over the past few months".

To celebrate her 18th birthday, Miss Harvey's carer Georgie Luppi, 20, has created a pre-recorded online show called an "Evening of Joy". It features Miss Luppi and her friends from the National Youth Theatre singing and dancing.

"We sing and we laugh and she makes me giggle, like no-one else. We always have such a good time," Miss Luppi said.

"We are just two young girls having a laugh - that's all it ever feels like, which is lovely."

Find BBC News: East of England on Facebook, Instagram and Twitter. If you have a story suggestion email [email protected]