The roll-out of approved treatment for a childhood neurodegenerative disease is due to expire in May.

The condition means Vinnie was born with one eye and a small jaw, as well as one of his ears being on his cheek.

Charly Allso, from Solihull, has vasculitis and is walking with her cat to fundraise for charity.

Anna Roberts, 11, is one of just 39 people in the UK with the CLN3 strain of Batten Disease.

There is no cure for Wilfred's disease and doctors do not know how it will affect him later in life.

A family from Northern Ireland have been speaking about taking part in the 100,000 genomes project.

Swansea man says Celine Dion's openness about Stiff Person Syndrome has helped to raise awareness.

Grayson's mum describes the fight to secure long-term medication to help make his life comfortable.