Memorial garden planned for infected blood victims

Amanda Patton  Simon smiles into the camera with his arm around his sister Amanda, who is also smiling. He is wearing a white shirt and has wavy brown hair and a wedding ring on his left hand which rests on Amanda's shoulder. Amanda has long dark brown hair with a fringe and is wearing a black top with a white flower patternAmanda Patton
Simon Cummings, who died in 1996, is pictured with his younger sister Amanda Patton

The sister of a man who died as a result of the infected blood scandal is fundraising so she can design a memorial garden to honour him and other victims.

Simon Cummings was a haemophiliac and died in 1996 aged 38 after contracting HIV from a contaminated batch of blood clotting treatment Factor VIII.

His sister, garden designer Amanda Patton, from West Sussex, hopes to create the memorial for the Royal Horticultural Society’s Chelsea Flower Show next year.

Gary Webster, who was infected with HIV and hepatitis as a child at his Hampshire school, said the garden would "keep this tragedy fresh in everyone’s minds".

Amanda Patton  An artist's impression of the proposed garden at Chelsea Flower Show depicting glass panels with the names of people who died after being treated with contaminated blood productsAmanda Patton
Glass panels will be engraved with the names of people who died after being treated with contaminated blood products in "Simon's Garden"

Ms Patton said creating a "beautiful and meaningful garden" at Chelsea would "inspire empathy and bring this important chapter of NHS history into the public arena”.

Mr Cummings, who worked as a radio presenter at County Sound in Guildford, Surrey, was first prescribed Factor VIII in the late 1970s.

His sister remembers how it improved the quality of his life but he and thousands of others had no idea entire batches were contaminated with viruses such as HIV.

Ms Patton, who lives near Pulborough in West Sussex, said his death had left a deep sadness.

"It’s not an exaggeration to say I feel his loss all the time," she said. "He is not here and he should be."

Amanda Cummings leans her left arm on top of a wooden fence with a green field and trees in the background. She has shoulder length brown hair with a fringe and is wearing a light coloured patterned blouse with a red ribbon pinned to the top left. She is looking into the camera with a small closed mouth smile
Ms Patton said she felt the loss of her brother "all the time"

The garden has been designed to use planting, sculpture and water features to express the emotions experienced by those affected by the infected blood scandal, which has claimed the lives of about 2,900 people.

A centre piece will be a pavilion made of glass panels, engraved with the first names of victims.

Ms Patton said: “I think the sheer scale of that will help to bring home the enormity of this disaster.”

At least 72 pupils died after being treated for haemophilia at Treloar's College near Alton, Hampshire, in the 1970s and 1980s.

Mr Webster, from Bishopstoke, was a pupil there and became infected with HIV and hepatitis.

Gary Webster sits outside in front of a white framed window. He has short light brown hair with a little grey, he also has a white stubbly beard. He is wearing a navy blue cable knit crew neck jumper
Gary Webster was infected with HIV and hepatitis at Treloar's College in Hampshire

He said: "The garden is important. It will keep this tragedy fresh in everyone’s minds.

"One person every four days is still dying from this. I think it could be a great place for many people to get some solace."

Fundraising is under way, with a target of raising £350,000 by the end of September.

Mr Cummings’ widow has already donated £100,000 towards the project.

If "Simon's Garden" goes ahead, following the Chelsea Flower Show, elements of it will be relocated to the grounds of St Botolph-without Bishopsgate church, in London, to create a permanent memorial.

Amanda Patton A mood board of the kind of flowers and structures the garden will haveAmanda Patton
Named after Mr Cummings, the garden is for everyone with haemophilia and other bleeding disorders who were caught up in the scandal